Saturday, February 14, 2009

September 1







We had a simply fantastic day! Will got his feeding tube removed, so al lthe junk on his face is gone!! He's been moved to a modified on-demand feeding schedule where he eats as much as he wants as often as he wants, or is woken up to feed after 4 hours if he doesn't get up by then. We're going to be rooming in on Sunday night, but he has to stay until at least Tuesday to demonstrate that he doesn't get apnea for a week off of the caffiene which he was getting to control apnea. So he should be home Tuesday, possibly Wednesday.

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