Will was very sleepy today! He slept through the 2 PM feeding. Preemies have a stronger drive for sleep than for feeding so often will continue to sleep instead of waking up to let you know they're hungry like a term newborn will. Often he wakes up and lets us know, and other times I have a few tricks to wake him up - I turn up the lights, pick him up and walk around a little (I can only walk a very little in front of his crib with all the wires), rock and talk. Nothing going today, he got cranky with me changing his diaper as usual, turned red and made fussy noises but wouldn't even open his eyes poor kid! I think it's because he took almost all of his night feedings by bottle, he was just worn out! So he got that feeding gavaged and we tried again at 5. He woke up nicely for the evening feed but still seemed physically tired. He did some good nursing for a little while but not as long as usual before he started putting his arms down by his waist, his cue that he's starting to get tired out so I switched to bottle and he was able to take his entire feed that way in addition to whatever he got from me.
He had a nurse I like today and has her again tomorrow. She doesn't have great bedside manner but she really takes good care of him and gets things done! I like that, they don't have to be my best friend, they do have to take good care of my baby! She has been trying to get him off the oxygen which is great! I've been working on it, encouraging his nurses to turn him down whenever they can and try removing the cannula for periods of time when he seems like he'll tollerate it. Every block of time without it is that much closer to getting used to it being gone and not needing it anymore. He's not there yet, but getting closer. He's on room air most of the time and his pressure has been reduced to almost nothing. The best news today is his weight, he's up to 5 lb 6 oz today, what a chunker!
His doctor stopped by to "update" me today. I've decided I really hate his guts, he's condescending, doesn't even make an effort to inform me of things in a timely mannor and doesn't answer my questions, as well as being the jerk who put my son on Endogen without my knowledge & consent. So I didn't make much effort to have a conversation with him, I've been going above him and talking to one of the other two doctors in the team, both of which give me straight answers and have MUCH better bedside manner, so I have no use for this guy. I wasn't outright rude, but I made it clear I wasn't interested in a deep conversation. It helped he happened to step in while Iwas in the middle of a diaper change. I think he's beginning to understand that I think the BONG of a shovel being smacked against the back of his head would be a very soul-satisfying sound, and frankly I don't care. I've asked to switch doctors because I don't want this man working on my son anymore, he put my baby's life and safety in danger, but they work as a team so I can't disclude him. I've been reading his chart while I have the curtain closed to nurse or pump, sneaky, so I can see what this jackass does without having to rely on them telling me. After the Endogen, I don't trust them to tell me. I also found out a bit of information they didn't tell me about his birth, in his chart there are a couple pages from my chart. Apparently he was having heart irregularities and decels the day of his birth and that was what finally prompted my doctor to get him out, my rising temp, white cell count, breathing difficulties, pain level and signs of infection weren't enough, they waited until Will was showing signs of distress and possible signs of infection. That irritates me! I made it clear I wanted him delivered BEFORE he became infected, the NICU docs made it very clear to me that the 10% of babies at his gestational age who don't survive most of them it's due to infection.
He looks like he's picking his nose in today's pic lol.. his form of self comfort is to move arms and legs to midline, he gets into a little ball and tucks his limbs to the center, usually with his hands on his face. In that picture he's compensating for being upset over getting his diaper changed poor guy!
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