I was discharged from the hospital on July 4. This is the first of many updates since!
We went to see Will again today. He had just been put on a ventilator. I've decided it's a good thing, he looked more relaxed and was resting more peacefully. He was working hard to breathe and it was making him too tired, this way he should be able to make some progress easier. That means the big CPAP tube was removed and he has a smaller tube in his mouth, so his nose is free. While we were there the top was off of his isolette and he had his hat and goggles off so we got to see his face and hair. He opened his eyes near the end of the visit and spent a while looking around after I got tochange his diaper, that really seemed to wake him up.
Results weren't back conclusively on his heart but the doctor told us they'll most likely be starting him on a medication which works in about 60-70% of cases, the remainder need surgery but he didn't seem to think it was a dangerous operation, pretty routine. His nurse gave us some things for his baby book,we got his tiny hat and some odds and ends, and a tiny little diaper his size. The diaper is so tiny it's about the size of my palm folded. The hat smells like him :) Anyway, here's a bunch of pictures, the light wasn'tgreat in all of them - he's not turning red again it's just poor lighting inthere and we can't use flash.
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